pacemakers suck

WARNING: long post, no cliffs. No spellcheck either.

I think most of us are pretty nieve/ignorant about what you are going thru. Fill us in the minoot details. We're all adults so be graphic. (only if you want to. you must be doing it on the blackberry, so if you get pooped out take a time out. But I know you're probably bored while taking it easy.)
Actually, I've been home since yesterday, discharged less than 18hrs after the op. Pooped definitely sums it up, I can't do much without feeling drained.

Whats involved in installing a pacemaker? Pain?
Suprisingly little. There is pain with any surgical procedure, and it feels much like that. The permanent pacer is in my left side, the temp was in the right. I felt like I got punched in the right shoulder/chest area for about 2days after the temp went in, and it's fine right now. The temp just runs wires through a central IV to the heart though, nothing installed in me, but it's a lot rougher on the body because it's an emergency procedure. The permanent pacer is obviously much more invasive but still gentler, so the pain is generally the same thus far. This pain is going to last longer though, because my body now has to heal around the pacer. Like I said, I feel like I got nailed a few times in the left shoulder/chest area. Other than that, many needle pokes and well over 100 telemetry leads being ripped off my sasquatch-esque body.

Pain while having an episode?
None at all. Without the pacer, I simply blacked out. VERY weird, vivid dreams though. With the temp pacer, which kicked in if my heart rate dropped below 30BPM, I wouldn't black out, but it's very hard to put into words. It felt like I lost touch with my entire body, but my mind expanded in ways I've never known. Again, very vivid and odd thoughts and feelings, but completely calming at the same time. I guess the best way I could describe it would be an out of body experience, even though I knew where I was, wasn't looking at myself from above or anything like that.

With the permanent pacer, it kicks in when my HR drops below 60BPM. The temp was a life saver, the permanent is a life continuer, so to speak. When it kicks in, it just feels like my heart flutters a bit, because my body hasn't crashed yet. Kinda like a bad taco. I haven't had an epsode with the new one, I only know the feeling after my poor nurse learned the hard way that my particular pacer resets, runs a diagnostic, and sends an impulse every day at 1am.

Is the device automatic? Like, does it pulse continuously, then mega pulse during an episode?
I'd say I have the VDC system of pacemakers. When my heart is working on it's own, which it still does, it just monitors. Like I said, it only pulses when I need it. The pulse itself is no different than your regular heart electrical pulses. No big shock like a defibrillator, even though there are pacers that do that. The really cool thing is, I have to see my cardiologist once a year for a checkup. During the checkup, they place a sensor over the pacer which pulls it's history. The monitoring, how many pulses and when, any problems, everything is stored in the device.

Can you feel the pulses?
Negative. Like I said, it's no different than your natural impulse, just forced.

Is it small? I remember they used to be large bulges in armpits. My wife says they're quite small now.
It's not large like the old ones, but I wouldn't call something foreign inside me small. I haven't had a chance to feel it up yet, but the doc grabbed my Blackberry Pearl and said it was roughly about 1/3 the size of it, and it sits just below my collarbone, not the armpit.

How often do you need batteries?
There are no batteries anymore per se, the entire unit gets replaced roughly every 10yrs, depending on battery life. The leads into my heart can last 20-30yrs.

...and most important: can you still use microwaves?
Yes, and cell phones, and just about anything else, provided I'm not holding them right against my chest. I need to avoid heavy duty electromagnetic fields though. MRIs, substations, power plants, mig welders, alternators, etc... Might cause a bit of problems considering I work for a construction company, but I'm not too worried.

And since I'm sure it'll be asked at some point: recovery. Obviously pain management, education, etc... The usual surgery stuff. The really big risk right now though is actually infection, due to the number of IVs, especially the ones near the heart, and all the shots. I was on Heparin, a blood thinner, meaning I needed to have blood drawn every 6hrs during the past week to make sure it was working. I have to Purell my hands after being out in public, as does anyone coming into my home. Just ask Runnah. Beyond that, I can't lift my left arm over my head or lift anything over 5lbs for a month, until my body has secured the pacer in place. I also have to take an asprin a day for the rest of my life, to thin my blood a bit to relieve a bit of strain on my heart.

Another piece of recovery that I have chosen for myself is a couple therapy sessions with a shrink. The grim reality is that I did almost die, and it woulf be good for me to have someone help me understand and work through these feelings. Another thing that bothers me is with this being heretitary. I know have to worry anout this with my daughters. Plus, the closest relative they could trace with something like this is a maternal great-aunt who died before I was born. She got a pacer in her early 30's too, from what sounds like something very close to what I have. She died in her early 40's. I know technology has vastly improved in the past 30-40yrs or so since her days, and I'm not even entirely sure what she died of, but it still weighs heavy on the heart and mind, as does the rest.

Anyway, feel free to keep asking questions. I certainly don't mind, and getting it out is another good form of therapy.

 
I think you're headed on the right track. Hopefully you'll be feeling betterer about what has/is happening. I'd def be getting help from the pros too. Although, I can only imagine about what feeling you are having. Kidney stones (heretitary), twice, is about as close to death I've ever come. Doesn't really compare for sure.

Stay positive. :thumbsup: Sounds like you are, that's good. Is there really any way they could test your daughters? Aside from having them on EKGs for a few hours, when in all likelyhood they'll probably be good to go til they're your age or beyond. And theres that 'skipping generations' thing.

What is it you inhereted? Born with a weak cam sensor or something? A signal being lost or never received? A weak heart? And what if you did know back when you were 8 years old. What would/could be done to improve things besides a Pulse GerneraTOR? Would they prevent you from doing physical activities or encourage you to do mucho Grande Cardiovascular-aerobic stuff to built up like big strong bull?

 
Should be interesting going through airport security with the trigger happy TSA folks.
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What did your doc say about exercise? Weight management? Not that we expect you to go run the Boston Marathon but still, could running/cycling (or in Maine, shoveling snow) be realistic activities?

 
Stay positive. :thumbsup: Sounds like you are, that's good. Is there really any way they could test your daughters? Aside from having them on EKGs for a few hours, when in all likelyhood they'll probably be good to go til they're your age or beyond. And theres that 'skipping generations' thing.
I'm trying, it just gets me thinking once in a while. Now that Sara's started to accept that I'm not just going to drop dead sometime, it's getting easier. As for the girls, there's not much we can do except watch for the signs. And it very easily could skip generation, as the closest they could trace anything to me was 3 generations ago.

What is it you inhereted? Born with a weak cam sensor or something? A signal being lost or never received? A weak heart? And what if you did know back when you were 8 years old. What would/could be done to improve things besides a Pulse GerneraTOR? Would they prevent you from doing physical activities or encourage you to do mucho Grande Cardiovascular-aerobic stuff to built up like big strong bull?
Not really sure what the exact cause is, my heart just isn't impulsing on it's own. And regardless of when it had been caught, the results would have probably been the same. The physical and cardio stuff can't hurt me, and even recommended. My heart muscle itself is strong and healthy, I just have a bad spark plug.

Should be interesting going through airport security with the trigger happy TSA folks.
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Already tried Walmart, and it didn't work. Kinda dissappointing. And I don't fly, so no worries there.

What did your doc say about exercise? Weight management? Not that we expect you to go run the Boston Marathon but still, could running/cycling (or in Maine, shoveling snow) be realistic activities?
All good things, no matter the condition. All I have to do is go light for a month or so until my body heals around the pacer, just so it's not bouncing around inside me. Then it's supposed to be business as usual. But, it's obviously been a little bit of a wakeup call, so I plan on quiting smoking and trying a bit harder at the weight management.

 
Should be interesting going through airport security with the trigger happy TSA folks.
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People with pacemakers, or other medical devices do not go through the regular metal detector, and they get a "special" treatment when it comes to screening
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People with pacemakers, or other medical devices do not go through the regular metal detector, and they get a "special" treatment when it comes to screening
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True, but I still have to provide proof. I have a legal pacemaker ID I have to carry with me at all times.

Another interesting note, caffeine is HIGHLY recommened, since it increases the heart rate.

 
Quiting smoking has been great for me. I did it the slow and painful approach. I quit, then smoked OPCs (other peoples cigarettes), then gradually stopped. I def noticed more vigore thru out the days, nights come quick. Can't stay up late anymore, nothing keeps me up late like smokes used to. But my lungs are freaking awesome now. I can run with the kids now. Shoveling snow doesn't kick my ass for the entire day anymore, only an hour or so after do I feel like puking. I used to long distance swim, I can do that again. Its weird. Almost immediately, a month or two after quiting, you'll feel healthier. More breath does wonders.

You aren't the only one that needs weight management. Haha, I have the Canadian Beer gutt. Its heavier, and it talks funny. :help: that's why I've been doing a ton of paintball with the kids. I like shooting stuff, and there is a lot of sprinting.

 
I just cut out the cigs randomly in the middle of the week 4.5 years ago... I feel better, but I still get cravings BAD, I have a much harder time consentraiting at work and I put on some weight... Still worth it, if just for the amount of money saved
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Any guesses on how much a pacemaker costs? Just the pacemaker.

And I'm doing alright, just still sore and tired, but getting better everyday. Can't go back to work for another 2 weeks though.
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Figured I'd give a 1 month update. So far, so good. It has gone off a couple times, and I've stayed up 'til 1am a couple times by accident and forgot it was going to go off. I have most of my movement back, and it really doesn't hurt anymore unless I push my limits too much, then I pay the price. My energy has slowly been coming back, but not as fast as I had hoped. After talking to my ex-aunt-in-law, who's some kind of doctor, she said it never will. Lack of energy is just an unfortunate side effect.

I also figured I'd post up some other stuff I remembered about, to try to satisfy someone unhappy with the lack of activity around here.
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Epic Post clown - posting from an Ambulance! Awesome! :thumbsup:
You ain't seen nuthin yet.

First day or 2 in the hospital. The bundle of stuff on my right side is the external temp pacer going into my body.

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My view for the first 5 days or so.

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Posting from an ambulance is not post whoring without the obligatory TTIWWOP.

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The new permanent pacer, after installation.

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After the bandage came off 3days later.

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And today.

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Other random musings I have yet to post:

Apparently, during my 2nd blackout the the ER triage, I took a swing at the nurse.

The paramedic that transported me was a guy I've known since junior high. He used to be a sheriff. Rumor I heard is that he was booted from the force for getting a little to frisky while frisking a suspect/prisoner/whaterever. Suspect was not female. Always knew he was a little off.

I went fishing with Runnah.

 
Nice jonny. :whip2:

So, who has the remote? You know, the one that makes you obediant and obey commands at the push of a button. I bet your energy will still improve. Just pay attention to your Ps and Qs. No more late nighters.

Glad you're healing all up nice. Did you catch anything good?

 
Jeff, sorry to hear that you've had these issues man, but glad you went to the hospital when you did.. I know this is way past due, but as you know I don't get on a lot lately.

on a side note, you are teh sexay with your shaved chest!

Glad your alive meng.

 
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